Gavin Christopher Owens
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< > May 2007
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Thu, May 31, 2007 7:17 PM
Gavin's warmer is here! It was delivered to our home today and it is so beautiful! I never thought I'd feel so much emotion about a piece of machine. Thanks to Pro2 of King of Prussia for making this happen. This is the only durable medical equipment provider that was willing to provide us with this warmer. Gavin continues to do well and we pray that he will continue at home now that we can keep him warm.
We began packing our bags tonight as we are planning on coming home tomorrow! Thank you to everyone for all the support, prayers, gifts and visits during this past month. Adam and I are always blown away by the love that everyone shows our family!Add a comment:
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Tue, May 29, 2007 7:47 PM
Well.... there is not much new to report besides the fact that we are all just so drained and tired both physically and emotionally. Gavin is doing good. He continues to get chubby! He just looks so great!
It's kinda a weird place to be in... we are so happy that he is looking so good but we are frequently reminded of the medical technology that is making him look this good. We often wonder when the day will come when we can get rid of some of these wires and tubes. There are times that I forget what it is like to cuddle a baby without alarms going off and tubes being pulled and knotted.
For now we are spending our days being entertained by Gavin and his mischievous yet sweet spirit. He is learning how to set off alarms and we have resorted to placing his temperature probe on his forehead so that he will not rip it off his belly. Madi is running this hospital. We walk up and down the halls and everyone knows her name! She quickly befriends all the children in the playroom and has all the nursing staff twisted around her finger. Madi tells me she's going to work and makes her way out to the nurses station and sits in front of the computer.
Again, I thought we were coming home tomorrow but there have been some delays but I think we should be home by the end of the week!
I wanted to add that the warmer should be at our home soon. It is taking a bit longer than I had expected. Hopefully there will be a smooth transition of it shipping and being installed at our home.
Thanks for all your thoughts and prayers! They are working!Comments:Mary Alice Carpenter: Gavin looks so good. What a living doll! Maybe he is part Indian with the termometer on his forehead! LOL What a joy Madi must be adding to everyone's life's. Prayers continue and faith will get you through.Lisa and Michael: Gavin looks wonderful!!! We are so happy to hear and see that he is doing so well. Go God! We will continue to keep your family in our prayers. God bless you!Heather LaBombard: Gavin looks GREAT!!!John Spencer: It is wonderful news to hear that Gavin doing better. Like many stories in the Bible, the time after the trial is always better then before the trial. I hope that you keep your faith and spirits up (like up). The good times are coming.Matthew and Amy: We love the new picture! What a difference a few weeks have made for Gavin. Its great that the kids are able to keep you entertained during your long hospital stay. Looking forward to your return home with you. Have a great week.Randy & Marilyn: What a handsome boy! His smile is contagious! We pray you'll be coming home this week. Know you're in our thoughts and prayers.Terri & Bruce: GAVIE LOOKS AWESOME!!! Give Madi a hug for us!! Continuing to pray and excited that you may be home this week...thanks for the updates..we look for them daily...blessingsThe Rich Family: What a journey you guys are on but try to keep looking up and know He is with you all the time. He has gone before you and loves you very much. We hope all goes very well so you can come home. Our prayers are continually with all of you.Fava Family: We are so happy that Gavin is making progress. Our family faithfully continues to pray for Gavin and for your whole family.Sue Kane: Nancy sent me the address for your journal. So good to hear Gavin is plumping up and the warmer is coming! My thoughts are with you and your beautiful family as you keep on keepin on.Add a comment:
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Fri, May 25, 2007 7:39 PM
Gavin received a new central line today. His fevers are gone and we have been having negative blood cultures. However, we are still in isolation until further notice. Gavin is doing ok. His weight continues to go up although it has slowed quite a bit. He has been having problems with his temp and heart rate the past few days but our doctor assured us that he is ok and is just being "Gavin."
Things are pretty stressful around here. Sometimes the things that we want aren't the easiest things to achieve...like keeping our family together. We are doing it because it is what we want yet on the other hand it has been so difficult. Madi and I will be coming home for a bit tomorrow to get the mail and water the plants. Madi is so excited to see her room and toys and has been talking about our adventure all night.
I thought that we would be coming home this weekend but it looks like we may be here a bit longer. This really stinks!!!Comments:Terri & Bruce: It was soooo good to see the 2 of you on Saturday when you stopped by the church. Let us know if there is anything we can do or if you need anything...we'll be in touch and are continuously praying...love yaMary Alice Carpenter: Well sounds like Gavin is fighting with everything he has. Glad the fever is gone and the Dr. sounds confident that this is normal. It is wonderful that you will be having aGardner Gang: You all are such troopers and we are praying for you all daily, especially handsome little Gavin! Hope Madi had fun visiting her toys and room:)Ava: yeah...Karen you are a great mommy. Thank you for taking such great care of Madi and Gavin!
(enjoy your road trip...I like to take naps when mommy drives...but you can't take a nap...you have to drive...take a nap when you get home...)aunt nancy: So glad to hear Gavin's progress. We know how difficult it must be for his family but you are incredibly strong and continue to amaze everyone.
You're in our prayers always. Love, Aunt Nancy and Uncle Al.Lauren & kids: Hang in there!!Lisa and Michael: You are all in our prayers! Blessings to you all and may Gavin continue to improve and may you all be home again together soon. God bless!John Spencer: Praying that Gavin will continue to get better. There is a bigger plan in all that is happening. What may at the time seem like a setback, may just be the next step towards that miracle we are all praying for. Susan and I will be praying for the whole Owens family. :-)Matthew and Amy: Although you may not be coming home this weekend, things are so much better than anyone thought just a couple of weeks ago. For that we are thankful. Glad to hear that Gavin is getting over his infections and that you get a little break from the hospital today.Stone Family: We continue to pray, so glad to hear about the fevers, Our 4 year, Amanda has been praying specifically about that.Lisa Hathaway: Ok, this is frustratingly funny...my message keeps getting cut off...praying for you all! Praying for rest!Lisa: The rest of my message said that it does stink to have to spend the weekend in the hospital or any day for that matter...praying forLisa Hathaway: Praying for you to have someJacob Fava: Baby Gavin please feel better and God make him healthy and gain weight and better. Done!Chris Cillo: So, glad to hear the fevers are gone and that Gavin is gaining weight. I'm the preschool director at MSF, and I want you to know that the kids here are praying for him ,too. There is one little boy in particular that asks to pray for him at snack time. We all look forwrd to the day when he is upstairs playing with the rest of the kids.carrie-anne&crew: You all are never far from our thoughts or our prayers. Glad Gavin is doing ok.gram &pop centrella: Hi kids,Good to find out the news we are in route to Denmark our last stop, You all have been heavy on our minds and we continue to lift you all p in our prayers,love to you all Gram and poppopAdd a comment:
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Tue, May 22, 2007 5:03 PM
Gavin is going to the OR tonight to have his line removed. He spiked a fever last night and we just are not able to kill the infection.... Go figure!
Comments:Lauren & kids: I hope the procedure went well! <3<3<3Fava Family: We will be thinking about and praying for Gavin as he has his surgical procedure.
Praying that Gavin's procedure went well and that his body is able to fight this infection. Jacob continues to faithfully pray for Gavin during his bedtime prayers!
Terri: Karen...you are incredible. You guys are doing an awesome job! GOD AND HIS PEACE BE WITH YOU!!! Know that we all are praying and excitedly awaiting a good report. Please let us know when you are able to have visitors. We have an abudance of stuff here for you from everyone and we were going to bring it on Monday till we heard of the report of being in isolation. Let us know...OK...Love Ya All....Terri & BrucePastor and Liz: This is a road you didn't want to take, but we know the same God is walking down this road with you and Adam and He will lead the way. We continue to believe and pray. Love you!The Seymours: We will pray that God will continue to take Gavin on the road to recovery. It is He who has brought Gavin to this point, and it is He who will continue to heal Gavin...with or without a line - we believe it! Peace and strength to all of you!Matthew and Amy: That really stinks! We're sorry to hear about this set back. We are continuing to pray. Thanks for the updates.Jimmy DeWan: I will continue to pray for Gavin tonight. I hope the infection gets out of his body. I will pray for his parents also.Add a comment:
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Mon, May 21, 2007 5:13 PM
Gavin continues to get stronger and BIGGER every day. Today was a very tough day as we are still dealing with issues around his line infection and other things. This morning I was told that we were going to pull the line and was pretty bummed about that. However, our FABULOUS doctor came and told me this evening that we can save the line as the latest positive culture was a different infection. Bad News...yet another different infection...Good News we get to keep the line.
We are getting pretty tired around here and we are so ready to come home. Hopefully very soon!!!!Comments:Lauren & kids: Good news, Karen!Matthew and Amy: We love the new picture of Gavin! He looks so much livlier than in his last pictures. That is great to see. We'll continue to pray that he get over his infections soon so that your family can finally come home.Marculo Family: We've been praying for Gavin daily...May God continue to bless and give strength to all of you!The Lord is faithful!Mark & KayAnn: We thank God for all the small rays of hope that keep breaking through even in the midst of the difficulties. Karen and Adam may you not feel the roller coaster ride but we pray that your emotions stay in the balance of all news. May the Lord help you hold your peace so that your strength remains undrained. And may the Lord continue to help Gavin overcome every obsticle until the Lord brings complete healing to his body.Stone Family: Read the update about the infection yesterday so that's what the focus of our prayer has been. We will continue to pray for your strength and his!fava fam: Gavin looks like he is full of energy. Keep the faith guys and trust God, you will be home before you know it.Add a comment:
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Sun, May 20, 2007 5:55 PM
Oh what a weekend... Overall Gavin is doing great! We have not seen him looking this good in so long. His weight is up and he has his energy back. On the down side he is still fighting the infection. His cultures have grown some pretty weird stuff most of which has been killed by the however one of his cultures has grown a Vancomycin resistant bacteria. Vanco is one of the strongest antibiotics out there and when the bacteria is resistant to this is can create some problems.
The infection appears to be in his line and there is a possibility that he may have to have his line removed. This just really stinks. He is doing so great right now and to have to remove the line will a challenge for him.
Because of this type of infection we were placed in isolation. It would just be easier at this time if we did not have visitors, at least until we can get the infection cleared up.
Hopefully we will be coming home soon. The warmer should be at our house by the end of the week. For now we just have to get rid of this darn infection!Comments:John Spencer: God has an awesome plan for Gavin. God's timing is never early or late, but just at the right time. Gavin's time is coming. I will be praying that Gavin continues to get better.Carrie-Anne & crew: Continued prayers and wishes to you. Gavin is a sweet boy. We are praying for healing and blessings. Energy and weight gain-two really awesome thingsMatthew and Amy: We're so glad to hear that Gavin is gaining weight again and that you might be coming home soon :) That is such better news than what the doctors were preparing you for. We'll pray for the infection to clear up soon.Randy & Marilyn: We'll be praying this week! It was so good to see you last week. Gavin looked great! Praying for continued weight gain for him and total and complete healing of this infection so you can all come home again. . . and praying for strength for you both as you care for him. Love you guys!Fava Family: Strongly praying that Gavin's body will be able to fight off this infection. We are so happy to hear that he is gaining weight and getting his energy back! Hoping and praying that you will soon all be home together as a family.Add a comment:
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Wed, May 16, 2007 4:39 PM
GREAT NEWS!
We got a call today saying that Gavin's warmer will be ready to bring home next week. Can you even believe it? We are so happy, words cannot express how grateful we are to be able to give this to Gavin and allow him to be at home. We have no idea when we will be able to come home as there are still many issues that need to be addressed with Gavin's health right now.
Everyone needs to know what a miracle this is. We have been trying all year to get this for Gavin with no luck. With just one call this happened within 2 weeks. Just as Adam and I were struggling to find hope God stepped in and said Here I am, I haven't forgot about you and the future that I have for Gavin. He is always just in time...not to soon and never to late!
Thanks for all your support and prayer.Comments:Lauren & kids: I hope the procedure went well! <3<3<3sandy , Micah Matthew: Great news. Our prayers are w/ you. Micah often lefts Gavin in prayer. God will continue to be there w/ you.Irv and Linda: Praise God! So happy that you will all have real family time together now. Will continue to pray. Look forward to hearing about all of the blessings yet come!Chris: Praise Jesus! We're all excited and ready to see God finish the work He's started. Glory!Dawn: Ava can't write this one...it's from a mom.
My heart delights in the Lord and for the goodness He is rising up and showing. Now that the bed has come through...you have TASTED and SEEN that ANYTHING IS POSIBLE and anything that is showing it's face to scare you from believing that is SURELY going to fail! AMEN (SO BE IT)in teh name of JESUS!
(Ava says HI GAVI...i love you)Fava: Thank God for this blessing. Still praying for you guysBruce & Terri: How exciting...GOD IS SO GOOD! Looking forward to hearing more and more great reports!!Liz DeFrain: Thank you Lord!!!! God is so amazing and we continue to look for miracle surprises!Jess & TJ: We are soo happy to here about the bed we will continue to pray for the other issues. God is amazingHeather: Awesome news...I am so happy for little Gavin. I pray that he will be able to come home soon & enjoy his nice warm bed. Always praying & thinking of you...HeatherJenn and Stacey: Yey!!! I'm so happy for you!!! We send our love and prayers...Matthew and Amy: We are happy to celebrate this answer to prayer with you. Hopefully Gavin will be able to come home soon to enjoy his new bed!Mom and Dad Owens: Our hearts are so full with praises to our Savior!!!!! Special thank you to Morning Star Fellowship for the Tues. night prayer meeting. Let's begin thanking God today for what He's done, and what He's going to do on Gavin's behalf in the days and weeks to come. We praise you, LORD!!!!!!!!
behalfTracey: Praise God for the opportunity to bring your little miracle home. He's always faithful! I may be miles apart, but you're close at heart...you're all in my thoughts and prayers daily. This may be a test, but I'm looking forward to a miracle testimony!!!! Love you!!!!!Lovell: That is so exciting. What an incredible God we serve!Bill & Ruby Wilson: GOD IS ANLisa and Michael: Praise the Lord! We're praying for Gavin and your family. God is good, all the time!Hannum's: YAY GOD!!!! And we'll add our faith to this being just the beginning of the answers God has for your future & Gavin's! Ours is the God who does exceedingly and abundantly- we can't wait to see what that means for you all.Randy and Marilyn: Praising God with you!Jeff & Debbie: Glory!!! This is just the beginning of the answers! We look forward w/ hope to many more! Now we'll believe Gavin will be ready to go home by next week! Still standing w/ you all!Mary Alice Carpenter: Thank you God. Next time could you help a little sooner so Adam and Karen don't get gray hair!!! Miracles do happen and we will continue the prayers for all of you. DON'T every let go of hope. Start every day with a PMA (Positive Mental Attitude) Smile a lot it's healthy.Add a comment:
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Tue, May 15, 2007 3:46 PM
This morning Gavin spiked yet another fever. A blood culture was done this morning and came back a little while ago showing Gavin has two separate bacteria infections. He is giving a lot of people a good scare right now.
Comments:Walk Family: Our prayers are with you during this time. Keep up your faith-- God always has a plan! We love you. Lisa and Michael WalkKelly Kohr: I just look at the pictures of Gavin with his Madi on his home page and I know everything is going to be alright. My prayers are with you!!!!!Grammy and Poppop: This little guy is remarkable. We will continue to lift up your family and especially Gavin. We will see how far we can spread the prayers on this trip, last time we hit Texas and Dubei.We love you and you will never be farfrom our thoughts.Rita Linn: The Lord is keeping Baby Gavin on my heart for prayer and intercession. The Lord is faithful, and will be to you.Matthew and Amy: We will definitely be keeping you guys in prayer. I'm sorry that things are so scary for your family right now.Amanda , Melissa, & Aunti Pat: We are all praying really hard for healing and for continued strength for you guys. We love you all very much!Aunt Nancy and the kids: We are in constant prayer for you and your family. The Lord has a wonderful plan for him. You are a very special family and we love you all very much!Renata: I'm asking the Lord to touch Gavin with His healing hands right now!
God bless you!Lauren and kids: Karen, I have everyone I know that prays praying for your little boy & family right now. Stay strong!Charlie & Lynda Yohe: Gavin is in our prayers for healing.Fava Family: Praying that Gavin will be healed of his infections. Jacob still prays for you every night!Jimmy DeWan: I will pray that the infections will be gone. So that he can start feeling betterAdd a comment:
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Sun, May 13, 2007 11:06 AM
Overall Gavin is doing fairly well. He has started with some re-feeding syndrome, which is the bodies response to increase caloric intake after a period of starvation. The electrolytes become imbalanced and fluid retention occurs. This is what Gavin is currently experiencing. He looks so chubby this morning, unfortunaley it is not good weight. He was taken off his TPN to prevent any cardiac issues and was started on IV fluid to try to correct the imbalance.
Yesterday Gavin's hemoglobin was 8.2 and this morning it has dropped to 6.5. This is a huge drop considering Gavin is not loosing blood. He will be transfused today and probably tomorrow the Hematology team will take a look at him and try to figure why he is not able to make adequate RBC's.
Our talk with the doctor yesterday went well. Although it was a hard topic to discuss, his doctor reassured us that the hospital is here to support us in anyway. We will most likely be here for an extended time and the Doctor stated that he will not discharge Gavin without a warmer, so this really needs to happen. Once he is discharged we will head up to Columbia in New York to see the metabolic team there.
Things are going so well with Madi and Adam down here. Thanks to all our visitors this weekend. It was great to see our family and friends!Comments:Betsy and Ray: We just want you to know that you and your family are in our prayers, may God give you the strength for each new day.Sean Davie: My parents have been attending morning star fellowship and sent your web page link to me. My heart goes out to your family. My family is praying for you and I have shared this prayer request with my church here in Georgia.
Numbers 6:24-26
The LORD bless you and keep you;
The LORD make His face shine upon you,
And be gracious to you;
The LORD lift up His countenance upon you,
And give you peace.Jenn: As always it was so great spending the afternoon with you Gavi, and Madi! My heart is filled with love for you everyday..hang in there..a miracle is in sight...all my love
JennMary Alice Carpenter: Happy Belated Mother's Day. You indeed are a very special and blessed Mother. You have two beautiful children and may God carry you through these tough times. We hope New York will have the answers for sweet little Gavin.Lisa and Michael: HAPPY MOTHERS DAY KAREN! You are an amazing Mom and we are so proud of you. We are praying for Gavin and the whole family. Thank you for all your updates. Much Love, God bless- Lisa and MichaelLauren & kids: Happy Mother's Day, Karen! Sending lots of love & prayers your way!Seymours: Wishing you a blessed Mother's Day, Karen!
Still believing for great things- healing, favor, grace, and all that you need :)!!!Fava Family: Happy Mother's Day Karen. You truly deserve it. We are strongly praying for God to deliver a miracle for Gavin's health to improve. We are also praying that you receive the warmer that Gavin so desperately needs. Love and blessings to you and your beautiful family.Joe & Angela: Karen & Adam, we will keep praying for all you guys, you have our supportJimmy DeWan: I am praying for Gavin and you guys. Keep me posted.Add a comment:
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Fri, May 11, 2007 10:59 PM
When it rains it pours... Gavin spiked a fever this afternoon. We started him on IV antibiotics and will wait to see if his blood culture grows anything.
Comments:Lisa Hathaway: Asking God to surround you with his love and protection...in awe of your amazing strength and faith this mother's day! Love you ...Owens family!Lauren and kids: Karen, I have everyone I know that prays praying for you guys. Lots of love to you & your family. <3<3<3<3Jimmy: Keep on believing in prayers. I am really praying for you guys and Gavin. He is such a cute little person. Keep on keeping me posted.Liz DeFrain: Karen, you are in incredible mom and I am praying that you will sense in a tangible way, the love and care of God on ALL of your lives. Know that your church family is surrounding you and Adam in prayer. We are having a time ofava: Gavi- I love you. My mommy loves you a lot too.
I know how much you love to eat your toes...but like your mommy said...you need to rest. I will try to fast eating my toes until you are better...
Lisa and Michael: We will be praying for you all!!! God bless you. You are a wonderful Mom Karen and Gavin has all he needs in you and your family. Much LoveDan Endy: Praying for you guys. Love ya lots.Add a comment:
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Fri, May 11, 2007 10:11 AM
I'm not really sure what to give as an update on Gavin as we are just not real sure where things are going from here. This is the worst the doctors have ever seen Gavin and because of his malnutrition we are just not real sure how his body is going to react to the re-feeding and increased calories. He has been pretty lethargic most of the day with some burst of energy with big smiles. The smallest activity tires him so quickly so for the most part I'd rather him just rest. Our doctor will be sitting down with Adam and I in the next day or so to discuss and prepare for the directions Gavin may go in and to inform us of the decisions we need to make as far as medial intervention. Please pray that we can make good decisions and that we will know what is best for Gavin.
Gavin is now on 24 hour daily TPN infusion and also we are trying to use his digestive system as much as he can tolerate. He is running at 10cc's an hour with 1/2 strength formula. He is currently receiving 212 calories per Kilogram, which is more than double what a healthy child would need to grow. His weight so far has not changed much. He is just a little over the 10lb mark. The process of letting him grow needs to be taken slowly this time as his body is so wasted that feeding him more could actaully make him worse. So far he is doing ok and hopefully this will continue.
Madi has been staying with me here at the hospital and let me tell you....the Lord must have his hand on her because she has been doing so well! Adam takes her back to the RM house at night to sleep with him and he brings her here in the morning on his way to work.
I added some pictures of him so people could see first hand how he is doing. I am aware that they are sad to look at but I think it might help those who are not able to see him in person get a feel for the level of prayer he needs.
We will update if anything changes...Comments:Sandee, Ree and Emma: You don't know us, but we check every day for new posts on how Gavin is doing. He is such a precious baby, and our hopes and prayers are with Gavin every second of every day. We have seen God work His miracles first hand, and we just know He has miracle for waiting for Gavin. Never give up hope and your faith. And, know that there are strangers out here, like us, who have faith in Him, and our hopes and prayers are with Gavin and all of his family. Please give your precious Gavin a hug and kiss from us, and let him know that he's is loved and thought of every day, even by people he doesn't know. God bless you all.
With all our love and prayers,
Sandee, Ree and Emmagrammy and pop-pop: God will give you all the wisdom you need in this most difficult time.He ahs been with you from the very beginning and He will not fail you now. you are a remarkable family and we are soo proud of you all. we love you with all our hearts.Evy: thatEvy: I continue to pray for your family. I think it is great that Madi is staying with you. I know God has a plan for Gavin & all of your family. I realize it is difficult to sit, pray and wait on his timing. Gram would always remind meMakr and KayAnn Engleman: After being alerted to Gavin's great need at present, we are praying. God is never late, He is always right on time even if we don't understand His timing He still delivers right on time. Grace, mercy, miracles for all of you through Christ Jesus who makes all things possible.Jenn and Stacey: We love you and send all of the positive energy we have to the whole family. I hope to be with you soon...kiss MAdi and Gavi for me
hugs and kissesJimmy DeWan: I will be praying so hard for him and you guys. I know that this is really hard. Just know though you have sooooooooooo many people praying for you guys. I know he will pull right through this. He is a tough person. Do keep me posted on how Gavin is doing. I pray for him everyday of every hour. I pray for you guys also. Keep me posted.Add a comment:
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Wed, May 9, 2007 12:22 PM
Unfortunately the time has come for Gavin to be admitted to the hospital. This was a decision that Adam and I made with his Doctor, as Gavin has been on a downward spiral for the last few weeks. His stay is indefinite as we have no choice but to let him live under a warmer and grow for a time. This is such a rough situation for us as we have been together as a family for over a month now and now we will have to be apart once again. Please pray that I will be able to find a balance between wanting to be with Gavin at his bedside and also have the strength to be a mommy to Madison and a wife to Adam.
We are willing to do what ever it takes to have Gavin be well but it just sucks (pardon my words) to have to do something that you just don't want to do, like pack up and live in a hospital room with another sick screaming child yet alone my own!
On a wonderful note, this week we welcomed a new baby boy into our family! My sister in law had her second little boy, Isaac Keifer Owens! We send our love to them as they enjoy their new addition to their family.Comments:the Seymours: Still beleiving for a miracle for Gavin and grace for your family in the waiting. We love you!Lisa Hathaway: I'm so sorry to hear this! Still keeping you all in my prayers...I admire your amazing strength through all of this!Mary Alice Carpenter: You couldn't have put it any betterJohn: I will be praying for you Gavin, as well as for your big sister Madi, and your Mommy and Daddy.
JohnFava Family: Hang in there Gavin. You have a lot of people praying for your health to improve. Karen, I can't even imagine how hard it is for you and your family, but keep strong. We will not stop praying for you guys!Jimmy DeWan: I will continue to pray for ALL of you guys. i will pray that he gets better each day. Keep me postedBob & Joan Miller: Karen, we are praying for you and your family. We know it is hard but Jesus promised to be with us through all things and at all times. We are praying for Gavin and all of your family.Teri and Rusty: We are praying for Gavin and your entire family.Marilyn & Randy: We are continually praying for stength for you, Karen and Adam. Know we are thinking of you and praying for your miracle. Love you guys!jennifer: I love you...Rita Linn: My heart aches for your family, but I must tell you you are still a wonderful witness of your strong faith, and the Lord is using it. When I see both of you on the stage, worshiping the Lord with your voices and talents, despite the heartache and worry with Baby Gavin. You are in my prayers. May God continue to use you for His glory, and I pray for a quick hospital stay this time, one that will strengthen and heal Gavin completely. God Bless.Ruby & Bill Wilson: I KNOW THESE ARE DIFFICULT DAYS FOR YOU AND YOUR FAMILY- GOD PROMISE TO NEVER LEAVE US-WE ARE PRAYING!Evy: I'm sorry to hear that once again you are at DuPont. I will continue to pray for strength not
only for Gavin, but your entire family. I know this must be difficult for everyone. I am praying that Gavin will thrive and grow. I know this must be hard for Madi to have Gavin in the
hospital and mommy with him. I am sure that God will give you the strength for whatever may come your way.
Jeff LaBombard: You're a very strong women to have come this far and I'm sure that as time passes the clouds will part. Remember... It only takes a drop of love to create the ripples of strength in the sea of life! Our prayers are with you and your family; always.
With love,
JeffAdd a comment:
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Fri, May 4, 2007 10:32 PM
Today was another long day down at duPont. Madi and I took Gavin down today to be transfused. I was hopeing that would pep him up a bit but he is still pretty lathargic. On the positive side he has a little color now. That's always nice to see! Gavin's weight is down below 11 lbs again. We have to put some fat on him!
We are looking foward to a quiet weekend. Adam and I will be at my parents house puting together a swing set (Well, more Adam than me.) Gotta love "normal life" time!Comments:Fava Family: We will not stop praying for Gavin and your family. We hope that he is tolerating his feedings and in time will begin to gain weight and regain his energy.Jimmy DeWan: I keep praying for youAdd a comment:
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Thu, May 3, 2007 7:34 AM
Gavin's GJ procedure went well and we were able to come home that same day. We have come to a very different place in Gavin's care and treatment. In the past we always had some type of plan and for the most part have had a "if this doesn't work then we will..." type plan. At this point, we need this to work. We no longer have another route to go. We have done everything and that is a very scary place to be at, as he is sill not progressing. We started the feeds and for the most part he seems to be doing ok excepte he seems to be just stooling the feed right back out. His new tube, which I will link a pic of for those who are not familiar with a GJ, has an additional port to the stomach which I can continuously vent into a bag, which gives him a lot a relief from pain. The doctors told me yesterday that starting up the feeds will take a little time since he had not had anything pass though his system in a while.
Gavin has been very lethargic the past few days and when is is awake just seems to be wanting to go back to sleep. This in part is probably due to his anemia but also he it just very weak right now.
I have gotten in contact with a manufacturer of a warming bed and they actaully got back to me with some interest in Gavin. If we could give Gavin a warmer to sleep under this would mean a drastic change in his health for the better. It's hard to get my hopes up for this but please pray for some grace from the FDA and manufacturer!Comments:Mary Alice Carpenter: Thank God the procedure went well. The doctor's are right...the key word is patience. As for the warming bed...drive them crazy until they get you one! Persistance persistance persistance. God Bless you all and our prayers continue.Lisa and Michael: You are in our thoughts and prayers constantly and you have the support of many of our friends and family as well! Keep being so strong for your little guy! :) He is blessed with an amazing family!Kelly & Brian Kohr: I continue to pray for Gavin and your entire family...you have so much support that I know he will pull through. Is there something that we could do if we raised money towards his warming bed? We will do anything that we can to help. We Love You!!!!Renata: I've been asking the Lord for a miracle...
I do know how difficult and worrisome this situation is for you!
May God renew your strength,your joy and your hope today!
Blessings!Matthew and Amy: Thanks for the update. We've been wondering how things went with the procedure on Tuesday. Hopefully the GJ tube has more success than its predecessors. We'll be praying about that and the warming bed. That would be awesome if they could help you.Fava Family: Strongly praying for Gavin's health to improve and for him to regain his strength.Evy: I am praying that Gavin will start to thrive. I hope you can get the warming bed. I know this must very hard for you at this time.
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We'll keep praying and trusting...
God bless you!
WE ARE PRAYING!!