Gavin Christopher Owens
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< > March 2007
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Thu, Mar 29, 2007 9:47 PM
It's been a long week...
Gavin has had a tough week. He has been struggeling with his feeds and his weight has continued to go down. We were really hopeing that this g-tube would really make a differance but so far things have not begun to get better. We have changed his formula to half strength and his rate has been lowered, which means that he is a lot more comfortable but also that he is not getting as many calories. We haven't seen him looking this bad in a long time- and that's really hard to see.
On a positive note we had our Home Care Agency come out to the house today and do an intake for Gavin's care. I am feeling pretty good about our decision to get outside help. Also Gavin's Dr. let us know that his liver numbers looked still further improved with the AST only very slightly elevated. We go to Clinic next week where Gavin will have his G-tube adjusted and we also have an appointment with his Primary Doctor.
Pray for a heat wave this summer! Gavin needs the warmth to grow!Add a comment:
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Thu, Mar 22, 2007 9:51 AM
Welcome Home Gavin! So begins our new life with being able to see Gavin's full face. We are so glad to be home. We spent the morning showing Madi Gavin's new boo boo and making sure all her babies have a similar tube. Gavin is back up to is full feed of 25cc's an hour. He is still only able to tolerate 3/4 strength formula but now that he can get his full day's feed without pulling out his NG - this should make a difference.
We have a long road ahead us. Gavin is now weighing less than he did back in November, which means that he has not gained any weight in almost 4 1/2 months. Another issue that we are exloring is his hemoglobin levels. Is it trending down because of blood draws and iron deficiency or is it due to his underlying condition? He has been having increased apnea along with the bradycardia, which is mostly due to his hypothermia at night. Neurologicaly he looks so great! For those of you who have seen him you know that he doesn't miss a thing! Our hope is that now that he can get his caloric needs met more effectivly he will have more energy to use for his physical development.
Gavin is such a strong little guy and we are hopeful that someday this will all be a faint memory! Thanks again for your support during these past few weeks. Hopefully our updates will be a little more infrequent as no news is great news!
Be sure to check out his new pictures and video clips. Take note of his new shoes!Comments:AuntPatUncleDonAmandaMelissa: This web site is so great. I love being able to see you Gavin! Such a happy little boy! Karen and Adam, we continue to pray for you all and we love you so much. May God continue to give you strength. See you all sunday.Mary Alice Carpenter: Welcome home Gavin! I am so happy to hear this chapter has ended and you can begin a new one. You are such awesome parents dealing with Gavin and making this a part of life for Madi. A guardian angel is watching over all of you. Enjoy every day as a gift and cherish to happy moments you share.Matthew and Amy: We're so happy that your hospital stay went well and was short. Its amazing that you're home already. Leave it to Madi to entertain herself with Gavin's new tube. You are so blessed to have two beautiful kids!Evy: It so great that you are at home. I will contiue to keep Gavin and the entire family in our prayers. I enjoy seeing the pictures and the video of my nephew. I am also praying for Ally.
Jason and Kristen: We are so glad to hear that you guys are home. We will continue to pray for Gavins and your family. Let us know if there is anything we can do for you.Heather & Jeff: This is great news! I am so happy for all of you! I hope that Gavin is adjusting well to being home again. I'm sure that Maddi is so happy to have her little brother home as well. My prayers are that he grows to be a strong little boy! Thanks for the update. XOXO.Aunt Jenny: Wow! Gavin looks so perfect as always!! How blessed are we to have this webpage!! Thank you for putting it together so all of the people in your lives can take part in this process. Words cannot express the joy it brings me to see my little nephew giggle and smile. Its amazing how much light is in his eyes. Your home!!!! Thats so fantastic! I guess all is in order for Sunday..and so I will see you all in a few days!!! Love yaLisa and Michael: Thanks for all the wonderful news about Gavin. He is SO BEAUTIFUL! Those videos are so cute- and the pictures too! We will keep Gavin, and Ally, in our prayers! Take care. Enjoy that sweet face :)Add a comment:
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Wed, Mar 21, 2007 6:18 PM
I wanted to take this time and ask all of you to please pray for a little girl and her family that we have gotten connected with over this past month. She is a very sick little girl and at this hour is fighting for her life. She is in need of a true touch from the Lord. Her mom and dad have been fighting so hard for her and they are very tired and scared right now. Please take a second to say a pray Ally. If you want to know more about her situation you can find out more at allyheintz.aboutmybaby.com.
Gavin is doing well and I will be sure to update more tomorrow.Comments:Bill & Ruby Wilson: JESUS TOUCH LITTLE ALLY.Add a comment:
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Wed, Mar 21, 2007 4:01 AM
Gavin has his new tube! Gavin did great during surgery and is sporting a new piece of body jewlery. He is in a bit of discomfort for obviouse reasons but otherwise his happy self. His hemoglobin was up to a 10, which is great for him. We should be going home within the next few days.
Comments:David And Lisa Hathaway: Still praying for you all! Can't believe all you have been through and you are so amazing...Love The Hathaway'sCarrie-Anne: Love and prayers to all! He has body jewelery...what a tough guy! Gavin you are a precious gift.Aunty Jen: Gavin!!! Yey, i'm so proud of you for being so strong!!! I'm happy to here that my little nephew is livin on the wild side with the body jewelry!!! Thats quite aggressive for a little guy. I'm so relieved that everything went well. I guess i'll be seeing the whole family in a few days!!! I can't wait. Love you!Grammy and Pappy Owens: Gavin, we love you so much. You are such a brave little boy. We pray for you every day, sweetheart. Hope to see you soon. Hugs and kisses.Mary Alice Carpenter: Thank God everything went well. I see your message was entered at 4:01 a.m. Please take care of yourself!!!! Those two babies need a healthy and well rested mother!!!! Keep your PMA (Positive Mental Attitude), hug each other and God will do the rest.Renata Marculo: I'm glad to hear everything is well!Praise God!
Hope you'll come home soon!
May God continue to bless all of you!John Spencer: Hey Gavin, I am sorry to hear that you don't like your newJill Heintz: Way to go Gavin! Wish I could come upstairs to meet you but things are to crazy down here in the PICU. Karen, I am glad to hear that all went well. Take care and hope you all break out of here soon.Bill & Ruby Wilson: WE ARE PRAYING!Liz DeFrain: Thanks for the update! There are many people praying for your family. You are much loved!Evy: I am happy that Gavin was able to have the surgery. I know once he recovers is will help him. I will continue to pray for your family as you continue on this journey. Love & Prayers.
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Tue, Mar 20, 2007 7:04 AM
We just wanted to let everyone know that the transfusion went well yesterday. We received a call sayng that GI wants to get an additonal CBC before we go to the OR today. His Hemoglogin needs to be above 10 to continue foward. Pray that he is way up and this will happen! We stayed down here at the RM House last night and Gavin and I had a nice time playing and singing. His sweet spirit gives me such inspiration to keep fighting for him and gives me hope for the future.
Thanks Again for your prayers. I'll be sure to post tonight.Comments:Lisa and Michael: You all, and especially Gavin, will be in our prayers! God Bless!Jason and Kristen: Glad to hear everything went well we are praying for you guys!Amanda: That is great news! I will continue to pray for you guys. I Love you all.Evy: I've been praying that everything went well today and that Gavin was able to get his G-tube.
I look forward to your updates.
Jimmy DeWan: I will continue to pray for you guys. I know everything will go good.Matthew and Amy: We've been praying for you all day (and telling others to pray for you as well). Hopefully all went well. We can't wait for the update!jennifer: I'm so happy to here that everything is going as planned thus far. You are in my thoughts through every second of this ordeal. I miss you guys so much and can't wait till Gavin is once again back home. I Love youMary Alice Carpenter: My prayers and thoughts are with you today. Hang on to that hope for the future. I loved your termjess: It was great to see you yesterday and I am praying all goes well today!Add a comment:
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Fri, Mar 16, 2007 11:18 AM
We were informed today that Gavin will need to be transfused on Monday before the surgery. As long as he has no adverse reactions to the blood we can still go to the OR on Tuesday. Thankfully we do not need to be admitted on monday and we may possibley stay at the Ronald McDonald House to avoid the travel back to duPont on Tuesday. Gavin stoped his IV antibiotic yesterday so he is all on his own these next few days. He is back down to 11lbs so we need this to happen! I'm feeling pretty good about things and Adam and I both just want to get this over with!
Comments:Jason and Kristen: We are praying and believing for a complete healing for Gavin! Continue to press on God has great things for your family!Amy and Matthew: Hey guys, we hope the transfusion went well today and that the surgery goes as planned tomorrow. We're praying that Gavin stays healthy and grows nice and big with the new Gtube.Evy: We continue to pray for all of you. I know that God has a plan for your family. Remember that God doesn't give us more than we can handle.Jennifer and Stacey: we are sending as much positive energy as we can to you each and every day. Every thing will work out as planned...We cannot wait to see the whole family next Sunday HAppy and above all else healthy.....all our love,
Jenn and StaceyCarrie-Anne & crew: We are praying for you all every day.Jimmy: I have prayed for you everyday. I will continue to pray. Keep me postedAva Engleman: Gavin- you can do it...i believe in you! Go get better so we can play together soon@
love,
AvaThe Stimsons: You are constantly in our prayers. The kids are your greatest prayer warriors. They miss you and really miss Madi. You know we are here for you if you need us! Luv Ya!Add a comment:
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Tue, Mar 13, 2007 10:30 AM
The G-Tube is once again a go! Gavin is scheduled for Tuesday the 20th. Please pray that Gavi can stay infection free and stable so this surgery can happen. Thanks for all your support. We love reading your encouraging words!
Comments:SFS gang: We are all praying and pulling for Gavin. Constantly bugging Gradpa Jim for news. Hope all goes well over next few weeks.David & Lisa Hathaway: wE WILL KEEP YOU ALL IN OUR PRAYERS FOR THE 20TH! Our God is so good...and He will do it! Love you all!Bill & Ruby Wilson: HI, HOPE TO GET IT POSTED THIS TIME- PSALM 46:1
Lisa and Michael: P.S... those videos of Gavin are SO CUTE! What a sweetie!! He's so beautiful. He's taking it all in stride!! You have a brave and precious little angel- congrats!Lisa and Michael: Hi Owens! We're still praying for you and know that God is watching over you! Take care!! We'll keep you all in special prayer on the 20th. Love in Him- Lisa, Michael, and Josiah WalkRenata Marculo: We'll keep praying!
God bless you!Elaine Stein: When I turned on Gavin's Wire Fun video, the song,Bill & Ruby Wilson: PSALM 46:1 STATESBill & Ruby Wilson: HI OWENS FAMILY, PSALM 46:1 STATESMary Alice Carpenter: God Bless you all. Our prayers continue and will be extra strong for the 20th. I will light a candle in Church and know God will take care of all of you.David and Lisa Hathaway: Hi Owens family!
So glad to hear you're home...sorry that surgery was post poned...you are riding the emotional rollercoaster very well...we will continue to keep you in our thoughts and prayers...hugs to you all!Evy: We are praying that everything goes well for the
surgery.Jimmy Dewan: I pray everything goes good.Add a comment:
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Thu, Mar 8, 2007 3:57 AM
Adam and I are happy to say that we brought our little guy home. We are not so happy to say that the surgry was cancelled...again! There was a communication error made between the GI department and the OR and Gavin was not off of his feeds long enough to get the G-tube. This was so frusterating for me becasue I spent the entire day preparing myself for this as I still am so uneasy about having this done. When they came in and told me that is was cancelled I felt that my emotions were thrown up and then smashed back down. They mostly likely would not be able to get him in untill next week and we did not want to keep him down at duPont for risk of infection and also just being away from home.
For now we are home on IV meds, which should clear the rest on his infection. We are also working with duPont to work out the details of our home care.
What a journey this has been...Comments:La Trease: I am glad to hear you are all home. I will continue to keep you in my prayers.Amanda, Missy, and Aunti pat: We are so glad you guys are all home again! You will continue to be in our prayers as always. We love you all so much! See you soon!Lovell: Glad you're home. I love getting these updates. The video of Gavin finding his toes and the wire one are both great. Thanks for sharing. We continue to pray for a complete healing for Gavin and peace for you! Love, LovellBill & Ruby Wilson: HI KAREN AND ADAM, SO GLAD YOU ARE HOME AGAIN- WE CONTINUE TO PRAY- WE ARE FRIENDS OF YOUR GRANDPARENTSBill & Ruby Wilson: HI KAREN AND ADAM, SO GLAD YOU ARE HOME AGAIN- WE CONTINUE TO PRAY- WE ARE FRIENDS OF YOUR GRANDPARENTSEvy: I am glad to see everyone is home together. I pray for all of you as this journey goes on. I can only imagine the emotional roller coaster this has been. I know the in home care will help alot. I've been the nurse giving the care and have seen the difference it can make on everyone involved. You are in my prayers.Jimmy: Glad your home again. Your in my prayers a lot and you will be fine. So will heAunt Carol and Uncle Mitch: Karen and Adam, You are in our thoughts and prayers always. Keep your eyes on the Lord and he will give you strength. Love The HammsJana: Welcome home again. I'm thinking and praying for you guys today!Add a comment:
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Tue, Mar 6, 2007 8:35 AM
Gavin has now had two negative blood cultures, which means that he is a go for his G-tube surgery. He is looking much better and we look foward to coming home most likely, if there are no complications, on Friday. We also have decided to have some home nursing throughout the week, which should take some of the pressures off of Adam and I. This was a huge step for me as most of you know I am a total control freak! I think it is in the best interest of Gavin as well as Adam, Madi and myself. I am looking foward to giving Madi more of my time and energy, she deserves it!
Thanks for all your encouraging notes! They are a real help to us.Comments:Don and Judy Moyer: Glad to hear that the G tube will soon be in place....we are also glad to hear that you will be getting some help via a nurse...hang in, you two are remarkable and your little guy is a real trooper. Continued prayers.Lisa and Michael: Wonderful news! We will still have you all in our prayers. So glad everything is a go for the surgery! Gavin is a tough little guy! :) Way to go on getting extra help- you need it and deserve it!!! Much love, Lisa and MichaelLois and Pap Owens: You are always in our prayers. We're so happy to hear this good news and we send our love.Matthew & Amy: Hey A&K,
Glad to head that the G-tube is a go, and that the bacteria is gone. I know you will be happy once he is no longer able to pull the tube out of his nose and rob himself of his cals. Karen way to go on letting the nurse step in, hopefully you'll get some rest while your at it. (You've definitely earned it.) Once you are all back under one roof and settled, we want to hang out again. We love you all! ~Matthew & Amy DaviesEvy: I am so happy for the good news. I will continue to pray for your family as you continue to make
adjustments. Love, EvyJenn Hartman: Hey Guys!
I'm so glad to here that he will be coming home..I am happy to here that you will have a little help with Gavin..and yes, I am totally surprised to here you are letting someone help out..I love you and continue to pray that all goes as planned..
Love Jen and Stacey!!!Add a comment:
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Sun, Mar 4, 2007 2:38 PM
To duPont Children's Hospital we go...
Last night Gavin was just not acting right and was giving Adam and I a real scare. He had some vomiting and was breathing very rapidly. We took him to the ER around 1am and when we arrived he had spiked a fever of 105. His cultures just came back positive indicating that he has another line infection (Gram Negative Rodd). On top of that he also tested positive for the flu. With Gavin being so frail somthing like the flu can be very dififuclt for his weak body to handle. He is looking the worst he has looked in a long time and we hope to see some progress this stay. When possible we hope to get the G-tube placed while we are down here, which will hopefully ensure he receives the calories he requires.
Keep Madi and Adam in your prays as we just spent the last week readjusting to home life and getting Madi back on track. She is a resiliant little girl and Adam and I so greatful for that. I think it's harder on me than her!
On a positive note, the transfustion went very well and his Hemoglobin jumped from a 6 to a 10.
Comments:BILL & RUBY WILSON: HI KAREN & ADAM, OUR PRAYERS ARE WITH YOU AND GAVIN AS YOU WALK THRU THIS STORMY TIME. GOD PROMISE TO NEVER NEVER LEAVE US. WE CARE, BILL & RUBYJennifer Hartman: I love you guys so much and find myself overwhelmed when I think about the struggles you face everyday with our little miracle baby boy You posess such amazing strength and courage fightimg day in and day out...My heart is with you every minute of every day. I wish I could be closer but know that you are in my prayers. Your strength is an inspiration to everyone..All of my love to you,
your sister,
JenLisa and Michael: We are praying for all of you. We also have many family and friends praying for your family. God is with you! We are always here for you. Love and Blessings, Lisa and Michael WalkJason and Amy Owens: Adam and Karen, the dedication you both have given to your children during a difficult time like this is inspiring. Keep looking forward - we will all continue praying for each of you. Love and prayers,
Jason, Amy, Bella, and BrycenKirsten and Mark Yarnall: Hi Karen and Adam-
I was thrilled to see you on this site. The support you will receive from people known and unknown will astound you. Our family has continued to keep all of you in our prayers and want you to know that we are available if you should need anything. I am sure you hear that from a lot of people!! Please stay strong and keep your faith right in the middle of everything. The Lord is ever present even at times when you may wonder where He is. At those times take just a moment to feel His presence so that you can be reminded that He is a constant companion. Our thoughts and prayers are with you and we believe that healing is in Gods plans.
Be Blessed,
Kirsten and MarkDavid and Lisa Hathaway: Lisa and I can't imagine what you are going through. You are so!!! in our prayers. The Lord is very near and I know is your strength, and will see you all through this too. If we can be of any assistance please do not hesitate to call on us. We love you. Your brother and sister in Christ, David and Lisa.Jimmy DeWan: I will be praying for all you guys. I know that God will get him through this. I know that he can fight this. I know he will feel better really soon.Keep me posted.Evy: We are praying for all of you. I know hard this must be for everyone.
Love,
EvyAdd a comment:
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Thu, Mar 1, 2007 7:27 AM
I recieved a call from our Doctor at Dupont yesterday saying that Gavin's Hemoglobin is low and that he needs some blood. So once again we will making our trip to Delaware tomorrow for a blood transfusion. I am so happy that they decided to give him some blood becasue he looks so blue/gray, which is a scary thing to see. This was something that I expected so I'm not to bothered by it. It is a farily simple process and we should be able to come home the same day if all goes well.
As for other news... Adam and I have made the decison to go ahead with the G-tube. Since comeing home last week Gavin has lost quite a bit of weight. I'm offically calling him my little Houdinie! He has learned how to pull out his NG so skillfully that he even has me stumped. Hopefully the G-tube will help him to get the food he needs and lets pray that he doesn't find his new "toy" anytime soon. I don't have a date yet for the surgery but hopefull it will be in the very near future.
We offically have the greatest family and friends in the world! Thanks to all who do everything from watch our little princess to give us hugs and smiles!Comments:Mary Alice Carpenter: God Bless all of you. I am a friend of Grandpa Jim and Grandma Linda and think about your entire family all the time. Remember that prayers do allow miracles to happen and never give up your hopes and dreams. Madi and Gavin are gifts from God. Enjoy and create great memories. My prayers will continue for strength and good health.Matt and Amy Davies: This website/scrapbook is great! Even if what you have written isn't the best news, its good to know so that we can keep you in prayer.nancy kohr: What a great idea! So good to see photos of your family. We think of you often and pray for Gavin's improvement.Love from Aunt Nancy & Uncle Alnancy kohr: What a great idea! So good to see photos of your family. We think of you often and pray for Gavin's improvement.Love from Aunt Nancy & Uncle AlJimmy DeWan: I pray everything goes well. I pray God will give you strength to go through this. Keep me postedAunt Evy & Uncle Dan: We are praying for all of you.Add a comment:
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your family. I know that having home care will be great addition. I have been the caregiver and
also the receipent of the care. It is welcome part of life. Love & prayers, Evy